Hypertrophic Cardiomyopathy Association: Provides support, advocacy and education to patients, families, the medical community about hypertrophic cardiomyopathy. Also supports research and treatment development. 

FH Foundation: The FH Foundation is a patient-centered non-profit dedicated to research, advocacy, and education of all forms of FH.

American Heart Association: Focused on building healthier lives free of heart disease by promoting heart healthy lifestyle choices, providing accessible education, and funding innovative research.

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